From Struggle to Support: Julia’s Inspiring Journey with Type 1 Diabetes
After one and a half weeks, I woke up. All I remember was extreme hunger—I was so desperate that I started chewing on table legs. Now, I laugh about it, but back then, it was a nightmare.
When I left the hospital, I received insulin pens and a glucometer. Insulin pumps weren’t widely available, and CGMs were not as technologically advanced as they are today, so my only option was to prick my fingers several times a day and record the results in a glucose tracker.
After some time, I got my first insulin pump (we couldn’t get it in my country, so we had to buy it), and everyone was thrilled. But life wasn’t as colorful as it seemed.
When I started first grade, my whole world changed. I was severely bullied because of my diabetes. Kids told me I would infect them, laughed at me when I walked home from school, and, to make matters worse, their parents also joined in the bullying. I had to change classes, and eventually, I switched schools altogether.
@insulinodependente sad but true #diabetes #type1diabetes #doabetic #insulinpump #fypシ #fyp ♬ bringing the era back yall - chuuyas gf
Along the way, I was also diagnosed with Celiac Disease.
Because of the bullying and my inability to accept that I had a chronic illness, I stopped checking my blood sugar regularly - sometimes only once a day or even every three days - and I often skipped my insulin doses. I hated my diabetes. I hated myself for risking my health and my life, but everything felt overwhelming.
By 2022, I had experienced DKA four or five times.
Everything changed when I met other diabetics and realized I wasn’t alone in my journey. I saw that everyone with Type 1 Diabetes faces similar challenges every day. We’re all just trying to survive, and each of us is walking the same path.
Diabetes will be with us for the rest of our lives, so we need to stop seeing it as an enemy and start treating it as a friend. We need to focus on the positive aspects it brings.
When I feel down or experience diabetic burnout, I ask myself these questions: Would I have such a strong community if I didn’t have diabetes? Would I be as empathetic if I didn’t have diabetes? Would I have helped so many people if I didn’t have diabetes?
Now, I see my illness as a beloved friend, I am grateful for the community it has given me and for all new technologies. My journey with Type 1 Diabetes led me to become a psychodiabetologist. "
- Join the Diabetes Online Community (DOC): Engage with platforms like Beyond Type 1 and Children with Diabetes where you can connect with others who understand your experiences and can offer support.
- Diabetes Advocacy and Education: Explore resources from organizations like Diabetes UK that provide education, advocacy, and updates on diabetes research and care.
- Mental Health Support: If you're struggling with the emotional aspects of living with diabetes, consider consulting professional assistance such as speaking to a doctor.
- Local Support Groups: Search for or attend local diabetes support group meetings to share your experiences and learn from others in a supportive, face-to-face setting.